The Alzheimers Society have released a new report on the lived experience of people with dementia, from diagnosis to end of life care.

The report called “From diagnosis to end of life: The lived experiences of dementia care and support” reviews the experience of people living with dementia throughout the whole dementia pathway.

Key findings include:

• People are still struggling to get diagnosed
• The lack of integration across care services and lack of ownership of advanced care planning leave people feeling they are unable to manage their condition
• Care planning and reviews are inconsistent and vary by location
• Carers struggle to access formal support to help with their role
• People with dementia struggle to access palliative care

DCAN will be holding a series of events reviewing the findings of this report from the perspective of the universal model of personalised care. To be informed when these events are scheduled, become a member of DCAN.