New report on lived experience
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The Alzheimers Society have released a new report on the lived experience of people with dementia, from diagnosis to end of life care. DCAN will be running events to discuss the findings.

The Alzheimers Society have released a new report on the lived experience of people with dementia, from diagnosis to end of life care.

The report called “From diagnosis to end of life: The lived experiences of dementia care and support” reviews the experience of people living with dementia throughout the whole dementia pathway.

Key findings include:

  • People are still struggling to get diagnosed
  • The lack of integration across care services and lack of ownership of advanced care planning leave people feeling they are unable to manage their condition
  • Care planning and reviews are inconsistent and vary by location
  • Carers struggle to access formal support to help with their role
  • People with dementia struggle to access palliative care

DCAN will be holding a series of events reviewing the findings of this report from the perspective of the universal model of personalised care. To be informed when these events are scheduled, become a member of DCAN.

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