The Alzheimers Society have released a new report on the lived experience of people with dementia, from diagnosis to end of life care.
The report called “From diagnosis to end of life: The lived experiences of dementia care and support” reviews the experience of people living with dementia throughout the whole dementia pathway.
Key findings include:
- People are still struggling to get diagnosed
- The lack of integration across care services and lack of ownership of advanced care planning leave people feeling they are unable to manage their condition
- Care planning and reviews are inconsistent and vary by location
- Carers struggle to access formal support to help with their role
- People with dementia struggle to access palliative care
DCAN will be holding a series of events reviewing the findings of this report from the perspective of the universal model of personalised care. To be informed when these events are scheduled, become a member of DCAN.